Showing posts with label Advocacy. Show all posts
Showing posts with label Advocacy. Show all posts

Social Robot

My name is Dave, and I am a social robot.

What I mean by that is, as much as I hate to admit it, I rely heavily on words and phrases that I've picked up from other people, TV, YouTube videos etc. My day job is to help customers via online webchat, and in the webchat world this kind of phrases are called canned answers or canned responses. I've always felt that I don't really have an opinion on most things, but I'm starting to realise that it's more that I do have opinions and feelings, but I don't always have the words to express them. Either that, or I don't care enough to have an opinion. Sometimes when I hear people talking about a certain topic I'll take a word or a phrase that I've heard them say that most closely matches what I feel and either repeat it back to them in the conversation to show that I agree with them, or I'll use it next time I'm talking to somebody about that topic. I think politics is probably the main topic that I've done this with because until a few years ago I really didn't have a clue about it. Not that I know what I'm talking about when it comes to politics these days, but I definitely understand more than I did.

This use and recycling of social canned responses is part of autistic masking, but it's also a way to learn about things for me. It gets me involved in the conversation (or what little conversation I generally take part in...) and helps me to pick things up and learn that way. And I guess the fact that most people don't share a lot of my interests probably helps with the masking side of things in that they don't know that it came from a game or a film or something like that.

Not all of my canned responses came from other places. I came up with some of them myself (although they were usually short) and I have been picked up on using the same words and phrases a lot in the past. One that I remember when I was a kid was that I used to "Yeah, fine" a lot and my dad joked that I should have a button to press so that it says it for me. Looking back it probably sounded a bit dismissive but it was the quickest and easiest way for me to express that whatever we were talking about was ok. I never was one for talking lots.

The term "social robot" itself came from a book I read probably around 10 or 15 years ago about how to meet women. The writer used it to compare the performance of meeting people and obeying social rules of "popularity" to how you would normally be in every day life. I feel that being a social robot is better suited to autistics in reference to masking for survival and to get through social encounters with neurotypicals. A lot of us have actively spent time studying social rules and observing neurotypical behaviour so that we can learn the behaviours and communication methods that we can then perform rigidly in our robot state to pass as neurotypical. I personally haven't done a lot of conscious studying of people, although I do definitely pick up bits and pieces as I go through life and they sometimes become so ingrained in me that I can't always remember where they came from, or that it even came from somewhere else in the first place. This is similar to (or maybe part of) how many autistics including myself have confessed that they don't know where the mask ends and where they begin. I would go into masking in more details but it's not something I've really got my head around yet in terms of how/when I do it, so I've asked somebody for a guest post about it from their point of view which should be coming up soon.

In the meantime, as always, please hit the Follow button in the side bar and follow me on social media. I'm on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.


[Image description: Black silhouette of a toy humanoid robot on a white background. Under the silhouette is the word "Autism" in rainbow colours, and under that is "Social Robot" in black.]

I Lost My Special Interest

Anyone who knows me knows that my main autistic special interest through my entire adult life has been professional wrestling. But ever since the Covid-19 outbreak things in the industry have taken a turn for the worst and while I still love wrestling in the sense of the art form, the athleticism and so on, I've majorly fallen out with the industry and I'm no longer willing to support it. This post is more of a rant than anything else but I need to vent as I've been sitting on this for at least a couple of weeks now.

I guess we should start at the beginning with the outbreak and the worldwide lockdown that followed. The first issue is with how WWE have handled the situation. They literally did no testing for Covid for the first 3 months or so meaning that their wrestlers and their off-camera staff were put at risk. They had changed to taping shows in an empty arena at their training facility which protected the public from infection, but that comes with its own issues which I'll get to in a moment. Despite a number of different wrestling promotions still continuing to put on weekly televised shows, I'm strongly of the opinion that all shows should have been cancelled until it was safe to continue, and I also think that taking a break like that would be beneficial to the company although my reasoning for that isn't relevant here.

Next up, we have a turn of events that was described by many as a "bloodbath" back in April. This was a mass release (a.k.a. firing) of many, many wrestlers and other back stage staff members. WWE have been known to hoard talent for quite a while now, resulting in having more wrestlers than they can feasibly make use of, and therefore a lot of them who really deserve better basically got lost in the shuffle. EC3 was a well noted example of this. He was a huge star in Impact! Wrestling before he went to WWE, but then WWE did next to nothing with him and barely gave him any screen time. Lots of these performers were cold-heartedly released from their contracts, which would normally have been a blessing for people like EC3, but it came at a time where the state of the economy itself was uncertain and lots of people worldwide were fearing for their jobs. There's also the fact that WWE really did not need to fire anybody at all. Yes, the firings free up some money for the company, but all of their financial reports show that with or without the performers and staff members that they let go of, and with or without the pandemic, they will survive as a company for years to come. After all, they are literally the biggest professional wrestling company in the world. Their hoarding of talent shows the stranglehold they've got on the industry, and although it's been known for years the firings well and truly demonstrate how much of a money-grabbing bastard Vince McMahon really is. But then, would you expect any less from one of Donald Trump's best mates?

Which leads me onto my next issue; WWE continued putting on shows because Trump classed them as an "essential business". Don't get me wrong, as a fan I'm grateful that we still got the shows as scheduled and I actually didn't mind the lack of audience to begin with, although the novelty did wear off. But the reason they got classed as an essential business -and thus allowed to continue as normal - is because Vince's wife Linda made the jump to politics a few years ago and is doing what she can to support Trump's re-election campaign. Basically, Trump allowed them to continue business as usual meaning that lives were put at risk in exchange for the McMahon family's help in getting him re-elected. Dodgy AF to say the least.

Now we go to issues that are primarily outside of WWE, but that's not to say that WWE wrestlers haven't been involved. This is the #SpeakingOut movement that saw females in the wrestling industry (wrestlers, partners, friends etc) speaking out about abuse that they had suffered at the hands of male wrestlers. The abuse that they told of apparently started in the British scene but had started to permeate its way into the US, and involved a whole range of things such as rape, manipulation, sexual harassment and the like. Lots of (mainly British) wrestlers were fired from the companies they performed for in the aftermath of these revelations and the most heartbreaking one for me was discovering that Ligero had been involved and subsequently fired from WWE's UK division. I'd long considered Ligero to be my favourite wrestler on the British scene having followed him for a number of years prior to him joining WWE, and he is (or at least was - I'm not sure if he still is after all this came about) one of the trainers at the wrestling school in Leeds that I would have loved to train at if I had the time, the money and no family commitments. I always wanted to train with him so now I feel betrayed by one of my heroes.

Then not long after #SpeakingOut took off, came the news that Impact! Wrestling had fired Tessa Blanchard - their world champion at the time. Not only is Tessa a phenomenally talented wrestler, but the fact that gave her as a woman the opportunity of holding the company's biggest championship speaks volumes about the faith they put in her... Until she went and threw it all away. The reason that I heard for her firing was that during lockdown she essentially couldn't be bothered to film any promotional/interview clips that the company kept asking for. As the company's top champion they quite rightfully expect her to keep her end of the bargain and actually do her job. This is even after they had stood by her through various allegations of racism and bullying, but she went and threw that back in their face. Just to give the magnitude of the situation some context, the last time any major wrestling company fired their world champion was way back in 1991 - almost 30 years ago -  when WWE fired Ric Flair.

You may think it's a good thing that they fired her, and I completely agree that it it is. But what pisses me off is that she's just 1 more example of this attitude in the wrestling industry that other people don't matter or are expendable, and the only thing that matters is that you get to the top of the industry. I mean fair enough, do what you can to make yourself successful and get to where you want to be, but don't do it by using other people as stepping stones, don't ruin people's lives for the sake of fame and fortune. Basically just be a decent person/promoter/company while also doing what you love.

If you follow me on social media you might have noticed that I was over the moon with my birthday presents in July, which were 2 wrestling Funko Pop figures. While I've fallen out with wrestling big time, the wrestlers who I've got figures of have done nothing wrong (at least to the best of my knowledge) so I'm still a fan of them as individuals. Plus my wife bought them both second-hand so I got 2 Pops that I really wanted without any money going to WWE. I've decided that I'm going to buy all of my wrestling merch second hand from now on. Just as a side note, one of the Pops I got for my birthday was Alexa Bliss. As an autism advocate I can sometimes dip into the mental health side of things, which leads me to look up to Alexa because of overcoming anorexia as a teenager, and because of how she's been known to encourage young people from time to time who are going through the same battles that she went through.

Sorry for the rant but I needed to get it off my chest. I was going to write this a few weeks prior to the actual time of writing but I was still too sore about it to bring myself to write it. In terms of other special interests, I love my Funko Pops and will collect more wrestling and non-wrestling ones, and I've been spending almost any and all time that I can on my PS4 - Currently playing The Last Of Us Part II if anyone's interested. please hit the Follow button in the side bar and follow me on social media. I'm on TwitterFacebookInstagramPinterest, and you can buy me a coffee at my Ko-Fi account here.


[Image description: My shelf of WWE figures, but not my WWE Funko Pops, which are on a different shelf. At the front are my Nano Metalfigs from Poundland of (left to right) Kevin Owens, AJ Styles, Demon Finn Balor, Becky Lynch and Seth Rollins. Behind them are my 3 full sized figures of Becky Lynch, John Cena, Finn Balor and Alexa Bliss. All are still in their original packaging except John Cena.]

Autism As A Label

Autism is something that's often considered by neurotypicals as "just a label" and not something you should be putting on yourself. Despite this, the autistic community take a very different stance on it, and that includes those members of the community who are self-diagnosed. As someone with lived experience of being told "it's just a label" prior to diagnosis, and then seeing and fully appreciating the value that said diagnosis brought, I thought this would be an important topic for me to discuss here.

After my first autism assessment concluded that my only issue was a lack of confidence it left me unsupported and without the closure I was seeking as both me and my wife knew there was more to it than the assessors had decided. That's why when I moved back to York I decided to go for a second opinion. The first GP that I saw in York was of an older generation who clearly didn't believe in mental health issues, which was shown by how she dealt with other family members seeking help by pretty much rejecting them and telling them they were over reacting. Anyway, in my particular case she asked why I want to label myself with something like that, she told me I didn't need it and then gave me the details of another mental health service that wrongly sent me to a couple of months' worth of CBT sessions for social anxiety. I soon realised the CBT wasn't working and arranged an appointment with a different doctor who then set the ball rolling for me to get assessed in York (my previous assessment was in Leeds).

Fast forwarding to over 18 months later I finally got my autism diagnosis, but not before I had difficulty at work in requesting reasonable adjustments because my role had changed. I think I explained in a previous post about the issues I had at work so I won't go into it here, but the long and short of it is that I had to fight for months to get any adjustments put in place throwing all sorts of law and regulations at them before I finally got the adjustments I needed, but even then it was on a temporary basis until I got officially diagnosed. My diagnosis came just as the temporary period was about to end and it made sure that it was made permanent. So that's one way in which being "labeled" by a diagnosis would have helped me much sooner when it comes to the world of work.

On a personal level though, the uncertainty of "am I/aren't I?" was unbearable and the acknowledgment that my diagnosis brought gave me so much closure and relief. I felt like I could finally be open about being autistic and discuss it more publicly than just in the online autism community. A fellow autistic online (can't remember who it was, but if I remember I'll edit this to credit them) once said that labels in the sense of food packaging are helpful because they give so much information about the food, nutritional information, allergens and so on, and basically said that an autism diagnosis is the same in that yes it is a label, but it's one that helps others understand that you might not thrive in social situations, or that you might be sensitive to loud noises, or that you might really, really enjoy trains or wrestling or anime or psychology or literally anything else. It's a much quicker, easier and more painless way of communicating your needs and your reasoning. Imagine if someone questions what you're doing when you're flapping your hands. If you answer along the lines that you're self-stimulating to soothe yourself because you're feeling overloaded they're likely to think you're a bit of an oddball, whereas if you answer with "I'm autistic," their reaction will probably be closer to "Oh, I get it now." At least, I like to think so anyway.

Autism diagnosis or a self-diagnosis isn't JUST a label. To many of us it's validation, it's acceptance, it's acknowledgement, it's understanding, it's a weight off our shoulders, it's a word that we can give to society to explain who we are. This is why we should be congratulated when we receive a diagnosis in adulthood instead of commiserated. I like to think that the same congratulations should apply to a family whose child has been diagnosed because it means they've been given a greater understanding of what exactly they may have been struggling with (if struggling at all - each family will be different) and what they need to do to help both their autistic child and themselves as a family. But in reality a lot of parents let their lack of understanding manifest in grief, and/or taking the wrong route in an effort to support their child (such as ABA for example). I guess being late diagnosed may have saved me from something like that in my childhood, but on the other hand there are things that I really would have benefited from had I been diagnosed in childhood.

I was bullied at lot at school and I would hope that having a diagnosis would have helped with that. I think it would have been another target for the bullies to get at me for, but I really, really hope that if I had been diagnosed my school would have done a hell of a lot more about it than what they actually did, which theoretically would have counteracted the bullying.

I've never been good at making or keeping friends and I believe firmly that if I knew I was autistic I would have received much more understanding from my peers as well as possibly known my own limitations and set boundaries for social situations.

Tying into that is my eternal struggle (until I met my wife) with romantic relationships. Each of my 3 previous relationships was shorter than the last, and the first 2 ended primarily because I was a lot more interested in them than they were in me. It's only in the last couple of months that I've discovered this is a very common autistic trait and the person we're dating can become a sort of special interest. Again, I think knowing I'm autistic and being able to explain that to my partners at the time would have theoretically made them a bit more patient and understanding of how I am. Either that, or it could have put them off completely and made them not enter a relationship with me in the first place. If I'm honest I don't know which route would have been better.

And finally, I think it would have benefited me in a professional capacity as well to have known I'm autistic. I've had more jobs than I think most people have, and I left a lot of them on bad terms. I know I've said it a lot here but it all comes down to understanding as I could have explained my needs and my employers could potentially have been more accommodating of them if we knew I was autistic. Don't get me wrong, there were non-autism-related issues that came up with some jobs (like when I was 20 or 21 I would show up to work hung over more often than I should have), but overall it was mostly issues that could have been addressed and dealt with had I been diagnosed autistic earlier on in life.

So there you have it. That's my take on the "label" of autism, and how it can be an extremely helpful thing for an autistic person to have in life. This is just my personal experience though, and I'm sure that there are infinite other benefits that autistic people have/would have experienced from it depending on when they were diagnosed. Please hit the Follow button in the side bar and follow me on social media. I'm on TwitterFacebookInstagramPinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: A red and white name badge that says "Hi, I am" in a digital font, and then "Autistic" in a font that resembles handwriting. This is on a white background with "Autism" written at the bottom in rainbow colours, and under that is "As a Label" in black.]

Working From Home Vs the Office

I've been working from home for a couple of years now, even before the pandemic hit. Previously to that I was entirely office based so I've experienced both sides as an autistic employee (although I wasn't diagnosed until I was already working from home) and just like many other autistics I much prefer working from home. With lockdown starting to ease at the time of writing I thought now would be the ideal time to evaluate and compare the two according to my own experience.

There are lots of reasons that I started working from home in 2018. One of the main reasons was that working from home meant working evenings so I could be around to look after my kids during the day while my wife is at work/uni. While getting up early with the kids and then working till 1am wasn't ideal for my wellbeing, it worked for what we needed at the time. The other main reason I started working from home was that the long drive from York to Leeds and back every day was leaving me exhausted, and I would sometimes find that I would dissociate (or at least I think that's what it was - if I'm honest I'm not sure I fully understand dissociation) and end up in a minimalist, autopilot mode while driving, which is not great for obvious reasons. So I asked to be moved to the Out Of Hours team to work from home.

In terms of within the actual job it's a lot more relaxed than in an office environment because it's in my own space where I can listen to music if I want, I could stroke my cat who would often sit next to me, I can eat where and when I want and so on. I've never had much of a sensory issue when it comes to working in the office but it's definitely better at home where I'm fully in control of my own environment.

When I was in the office I wouldn't bother asking for the blind to be closed even if the sun was in my eyes because there were loads of other people there to consider as well so it just felt easier to put up with it while the sun was rising or setting, whereas at home I can just close the curtains at any time. Hot desking isn't an issue either. Not that it was an issue for me really, I just preferred to stay at the same desk all the time because it gave me a feeling of belonging, but it can be an issue for a lot of autistics. There's no office chat in the background to deal with, and most of the background noise is my choice anyway.

One of the things I have had an issue with while working in an office is having to wear a certain dress code. For example, when I worked for a bank we had to wear a shirt and trousers. The way shirts feel on my skin can bother me unless they're quite soft, and because I'm constantly battling with my weight it's often a struggle to find shirts that fit me properly. When you work from home you don't have this issue because you can wear what you want. Even before lockdown I worked my fair share of shifts in just my Darth Vader onesie and nobody was any the wiser, nor would they have cared if they knew.

Like I said, I wasn't diagnosed autistic until I was already working from home, but freedom to stim is another big benefit of home working. In all honesty, I don't know if I would have been happy to knowingly stim in the office if I hadn't gotten my head around it while working from home first. We used to have monthly office days, and because I'd already come to understand myself and stimming more by that point I didn't mind doing it in the office. My stims are mostly quite subtle/acceptable anyway such as chewing, spinning on my chair, jigging my leg under the desk etc.

The one negative to not working in the office that I can think of is that I quite enjoyed being around people as long as I didn't have to talk to them, and it was just once a month on our office days. I think going to the office just gave me a sense of actual involvement in something bigger, whereas working from home makes it easy to get stuck in a rut. With that said, I'm sure that if/when they send us back to the office full time after Covid it'll soon turn into a different story!

That's my point of view on working from home vs the office, and it's safe to say that I'll chose working from home without question whenever given the choice. Everyone is different and everyone has their own experience so there are likely things that I've missed that can be argued for and against each one, but this is my own personal experience having been on both sides. Please hit the Follow button in the side bar and follow me on social media. I'm on TwitterFacebookInstagramPinterest, and you can buy me a coffee at my Ko-Fi account here.


[Image description: A picture of my desk that I use for work. There's a black mouse mat to the right of the computer, my headset to the left, and various items scattered around including post-it notes, pens, sweets etc as I share the desk with my wife who uses it for her uni work. There is light shining through the window above the computer, which can be seen slightly to the right of it on this image.] 

Social Hangover

Being diagnosed autistic later in life is weird in a way. There are some things that even now, 18 months after diagnosis, I'm still working out about myself and my past even though in reality they should have been clear signs that I'm autistic. The thing that dawned on my most recently was that whenever I went on a night out I would always feel hungover the next morning, even if I didn't drink. There was a period of about 6 months in my early 20's where I couldn't drink because of the medication I was on, and there were other times here and there where I chose not to drink for different reasons, but every non-drinking night out still left me with what felt like a hangover the next morning. Granted, a less intense hangover than if I had been drinking, but other than intensity it felt pretty much the same. I never knew what it was until it randomly occurred to me the other day.

Now that I'm armed with the knowledge that I'm autistic I've put it down to being worn out by social interactions. I would wake up feeling nauseous, which is known to be a common thing in neurodivergents. When you feel anxious or worried for example, you feel it in your stomach which is why a lot of autistics develop stomach issues or other digestive issues. Growing up autistic (especially if you don't know it) is a stressful experience so it makes a lot of sense that my stomach would be sensitive the following day. I also used to feel physically over-sensitive after a night out, which does happen when I'm tired. I don't think that's just due to staying out late because at the time I was largely struggling to find work so I slept in a lot due to having nothing to really get up for. So the tiredness must have been mostly from trying to be sociable and exhausting myself. I sometimes had a headache in the morning as well, although that wasn't as frequent as the other symptoms. They are all signs of tiredness and/or stress which makes a lot of sense if I'd been putting a lot of effort into masking.

Masking isn't something that I've ever been aware of doing, but looking back I must have masked in some way or another through my childhood and up to around my mid-20's for nobody to have realised I might be autistic. It's a common thing for autistics to not know where the mask ends and where they begin so it's not surprising that I've never knowingly done it.

It's just a quick one this week because I just wanted to share that sudden realisation that when I used to go out but didn't drink I got social hangovers. To be honest, I'm not even sure if "social hangover" is the right term for it, or if there's even a term for it at all so I'd be interested to hear what you call it in the comments or on social media. Also let me know if you get social hangovers whether it feels the same or different for you. Please hit the Follow button in the side bar and follow me on social media. I'm on TwitterFacebookInstagramPinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: Black silhouette of a human holding their head with both hands and lightning bolt-like symbols near the head to show distress. Below that is "Autism" in rainbow colours, and under that is "Social hangover" in black.] 

Insomnia

It's common for autistic people to either have trouble sleeping or be what most people might call a night owl. This is something I relate to and there is a neurological reason for it. I've always found it hard to get up on a morning unless there was a specific reason to get up such as school or work. There were a few periods in my late teens and early 20's where I found myself struggling to find work, and in these times I always found myself staying up later and sleeping in later because there was nothing that I absolutely had to get up for. Once or twice I decided to reset my sleep schedule by not sleeping on the night, but instead waiting until the following night when I'd go to bed at a "normal" time and then it gave me a decent night's sleep feeling reasonably awake the next morning. It didn't last too long though.

The reason for this is because the autistic brain tends to produce more melatonin during the day than it does at night, as opposed to a neurotypical brain that produces melatonin at night instead of during the day. Melatonin is the hormone that regulates your sleep cycle and is produced by the pineal gland in the brain. As you've probably gathered, the presence of melatonin is what makes you go to sleep, and when your melatonin levels drop that's when you wake up. The main factor that seems to trigger the release or reduction of melatonin is how light or dark it is. Autistic brains are often wired up to get this the opposite way around to the general population.

I've always had a tendency to not properly wake up until later in the day, but this really stepped up when I had kids, especially because my son was bottle fed so I did most of the night feeds. Even nowadays I find it hard to get up when my kids get up around 6:00 or 6:30am when they want me to get up. I try to drink tea (I don't like coffee even though it'd probably work better) for a caffeine boost but whatever I do I never really feel awake until just before lunch time. Conversely, my head feels by far the most awake and the most active around midnight to 1:00am. I've spent the last couple of years working until midnight until recently, which is ironic. I always feel exhausted early in the morning, but despite waking up still tired and mostly having no more than 5 or 6 hours' sleep I can't always sleep at night because my brain is too active. It's often around 1:00am that my brain processes things that have happened that day, and that I have a lot of ideas for things like blog posts or other things that I want to do. In fact, the custom vinyl figure of Christa Holmans that I made was a midnight idea.

I tried herbal sleeping tablets not long ago to try and help me sleep on a night because it was becoming a lot more frequent for me to struggle getting to sleep, but it didn't do much. I'm not sure if that's because I'm autistic but for whatever reason it didn't work. Because of things like autistic sleep patterns I think it's great that companies are moving to longer and later opening hours as well as more remote working facilities. It makes for an accessible society in terms of both customers and employees. Granted, we've mainly moved away from the standard 9-5 quite a while ago but there's still a way to go and there should be more out of hours access than there is at the moment.

I've always been quite good at sciencey subjects so I find things like the reasons for sleep cycle differences really interesting. If it's been just as interesting for you please hit the Follow button in the side bar and follow me on social media. I'm on TwitterFacebookInstagramPinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: Silhouette of a bed with a love heart on the headboard. Under the bed is the word "Autism" in rainbow colours and "Insomnia" under that in black.]

Self-Diagnosis

Self-diagnosis is something that I struggled with a little bit before I was formally diagnosed. Well, maybe saying I struggled isn't quite right, but I didn't feel comfortable in disclosing my autism while self-diagnosed unless I had to. I knew I was autistic before diagnosis but it felt like it might just be in my head so I didn't dare tell anyone except members of the online autism community who I'd never met. Obviously it's most likely not the case that it's just in your head so I wanted to go over some reasons why self-diagnosis is perfectly valid.

1. Autism is often overlooked in women and in minorities because it used to be seen as something that only occurred in white males. We know nowadays that literally anybody can be autistic.

2. Getting a diagnosis can be expensive in certain countries. Here in the UK it's done under the NHS for free, although there is also the option to go private.

3. The diagnostic person/team that assesses you might not be as knowledgeable or up to date as they should be. This happened to me when I was 1st assessed. They decided I wasn't autistic, so when I moved to a different area I had to ask to be referred again for a 2nd opinion where I finally got my diagnosis.

4. Even if you can afford a diagnosis the wait time for it is often ridiculously long. I can't remember how long my 1st assessment took, but I know my 2nd one was 18 months from my GP referring me to me getting my diagnosis.

5. Diagnostic assessment may not be physically accessible. I would imagine there's probably an assessment centre in most (if not all) major cities, but more rural areas might not have one meaning that you'd have to travel.

6. Your GP might refuse to refer you. This happened to me and I know it's not an isolated case. The GP I saw refused to refer me because she decided I didn't need to label myself. This is problematic for a few reasons, not least that it's not for her to decide. It's our own decision whether it's something we want or need.

7. Under the UK's Equality Act 2010 a diagnosis is irrelevant when asking for accommodations at work. As long as you meet a set of criteria your workplace are legally obliged to offer reasonable adjustments for you with or without a formal diagnosis.

8. Some autistics might feel shame or fear around getting officially diagnosed. This could be because of how they personally view themselves and/or autism, it could be due to family pressures, or any number of reasons that they might want to quietly keep their identity to themselves.

9. Some people simply might not want to chase a formal diagnosis, but be content in self-identifying as autistic. Fun fact: Tim Burton has identified as autistic for years, despite not being diagnosed.

10. Nobody knows you better than you!

There is concern within the neurotypical community that with self-diagnosis of autism people will use it as almost a fashion statement, or irrationally jump to conclusions about their own neurotype. I think these concerns are quite reasonable if you're looking from an outside perspective like neurotypicals will be, so I wanted to quickly address both sides to close this post. I want to reassure neurotypials that jumping into a self-disagnosis like that is a rare occurrence. While I'm not saying that everybody who self-diagnoses does so correctly, it's usually more about identity and isn't something that's taken lightly by most people. We take a lot of time, research and soul searching before we diagnose ourselves. And that leads me onto my point addressed to self-diagnosing autistics or those considering it. It's best to take your time and really think and research what autism is and whether you identify as autistic. There are a ton of autism resources online in the form of blogs (like this one!), YouTube channels, Facebook groups, Twitter hashtags and so on that are dedicated to helping anyone and everyone understand and accept autism. There's nothing wrong with self-diagnosing, but all I'm saying is do your research and stay informed.

If this list of reasons for self-diagnosis being valid has been helpful please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: "World Wide Web" logo (a black globe logo with "WWW" running through the middle) on a white background with "Autism" underneath it in rainbow colours, and "Self-Diagnosis" beneath that in black text.]


Guest Post: Autism In Women

I've got another guest post for you this week. This time it's by Vicky of Actually Aspling who is a brilliant and very active autism advocate, a fellow northerner, and has a Vaporeon tattoo on her arm which I love! You'll find her own blog here, and she's ActuallyAspling on both Twitter and Instagram. I realised that one of the biggest areas I haven't discussed yet is autism in women so I asked Vicky to write a piece on it for me since I'm not really qualified to talk about it properly due to being a man. So here we go with Vicky's thoughts:

I honestly can’t remember much from my childhood, only what I’ve been told from my parents, things are quite blurry in that sense. From what I know I was quite passive as a small child, and didn’t have many friends, and to be honest that hasn’t changed much.

I’d say being a girl definitely heightened my experiences in some ways, and for that reason I went undiagnosed for many years. Our understanding of Autistic women and girls is ever-growing, its evolving, and we are learning every day, but sadly it came too late for me.
High school for me was a nightmare, everything went wrong, and I stood out for all the wrong reasons. You could say I was a typical Autie girl. I clung to all my friends, I copied their behaviours, hoping I could survive the school day. It didn’t work. As a result, I camouflaged even more, changed my interests and created a whole new persona, something which many young Autistic girls feel they have to do to pass as Neurotypical. The issue is, we shouldn’t be pressuring Autistic individuals to do so, we should be teaching them, giving them the skills to be themselves, and allowing them to unmask.

Honestly, I think one of the reasons I was undiagnosed for so long is because of this mask, I had created a person who could fit in, who could pass as neurotypical, I appeared ‘normal’ or ‘high functioning’ to some. But the thing is, every Autistic woman is different, just like every Autistic person is diverse, its not one size fits all. I also think the understanding of trait presentation was lacking, especially in medical services.

I remember the first time I went to my doctor, I told her I think I could be Autistic, and I could tell by her face that she didn’t believe me already. So, what did she do? She printed off a biased, probably outdated questionnaire from her computer and proceeded to ask me a set of questions. One of which is ‘do you have friends?’ to which I said yes, and that I did like to go out with said friends. And of course, that meant I couldn’t possibly be Autistic, because we all know Autistic people cannot possibly have friends. I came across as quite social, again like the typical autie woman.

Eventually I sought a different opinion, and I was referred straight away for an assessment. This was fantastic, the only downside? My assessment was completed using the Autism Diagnostic Observation Schedule (ADOS), an outdated tool which lacks empirical sensitivity, it is biased and its methods do not reflect traits which are often displayed in women and girls. It’s a tool which follows stereotypical ‘male’ traits. However, I eventually did receive a diagnosis, after years of camouflaging and comments that ‘women can’t have autism’.

So many young girls are going both undiagnosed and misdiagnosed due to outdated tools, a lack of sensitivity and an absence of knowledge. Its about time that things change, we need a new perspective on Autism, but hey, I’m working on it!


[Image description: Vicky sat in her garden cross-legged holding a blue mug with both hands. She has short-ish light brown hair and is wearing a blue t-shirt, blue Christmassy trousers and white socks.]

Well Known Autistics

It's a common misconception that autism is an epidemic that's affecting more and more people as time goes on, not unlike the real pandemic that the world is in the middle of at time of writing. The truth is far from it, and autism has always been around throughout human history because it's just a natural form of diversity. People often thing of diversity as physical things like skin colour, gender and so on, but there are mental forms of diversity as well, which is the basis of the neurodiversity movement encompassing autism, ADHD, dyslexia and so many more conditions.

With that in mind, there are of course figures throughout history who were autistic even before autism was discovered or thought of as a thing. I believe that a significant number of them made some form of significant contribution such as Einstein, Darwin, and who knows how many more. I wanted to look at some of the more well known people of recent times to show what exactly we autistics are capable of in a wide variety of fields, and to help bust the myth that autism is nothing but a disability. So let's get started with undoubtedly the most influential autistic to my own life:

1. Satoshi Tajiri
For those who don't know, Satoshi Tajiri is a video game designer/director and the genius responsible for my first recognised special interest, Pokémon! It all started with his special interest in collecting bugs and how collectors would capture them in a similar way that Pokémon trainers capture Pokémon. When Nintendo's Game Boy was initially released Tajiri imagined bugs crawling backward and forward through the game link cables from one Game Boy to the next, pioneering the idea of trading between players and working together instead of just playing against each other.

2. Dan Aykroyd
The star and creator of Ghostbusters took inspiration from his fascination with parapsychology and the paranormal to create what was apparently a fantasy epic before it was toned down on the fantasy elements and became the Ghostbusters that we all know and love today. He originally wrote the role of Peter Venkman for his close personal friend John Belushi to portray, but following Belushi's death he re-wrote it for fellow autistic Bill Murray instead.

3. Tim Burton
Tim Burton has never been diagnosed as autistic, but he strongly identifies as such which makes him self-diagnosed. He's known for his heavily gothic and weird influences in his films such as Edward Scissorhands, Alice In Wonderland (2010) and of course Beetlejuice, the cartoon of which I loved as a kid. And without Beetlejuice giving Winona Ryder her breakthrough role in 1988 she might not have gone on to star in a more recent favourite of mine in Stranger Things. While I can't say I'm a huge Burton fan myself, I'm certainly grateful for Bettlejuice.

4. Susan Boyle
From what I can remember hearing at the time, the news stories painted Susan Boyle as a bit of a laughing stock in her local area when she first appeared on Britain's Got Talent in 2009. When she first stepped out on the stage there was obviously something different about her that (I would say wrongly) put the audience and the public on edge. But when she started singing in her audition she showed how brilliant she is at what she does. She came in 2nd place in her series of BGT although it's arguable that she was the real star. Ironically enough she was only beaten by Diversity. She's since gone on to release a very respectable 8 albums and winning numerous awards.

5. Hannah Gadsby
Hannah Gadsby is one that I've only recently heard of within the last year or 2 when I saw her Netflix special Nanette. The show was actually written shortly following her diagnosis of both ADHD and autism, and was also written as a response to Australia's attitude at the time on same-sex marriage. The show has been described as ground-breaking and I'm sure her work will continue to break down barriers for the rest of her career.

6. Lewis Carroll
I've seen many autistics online theorise that not only is Lewis Carroll autistic, but also that his greatest creation Alice's Adventures In Wonderland is based on his own efforts to understand the neurotypical world as an autistic person. There is a darker side to this one though because it's been debated whether Carroll's preference for the company of children over adults comes from his difficulty in communication (it's often the case that autistic children prefer the company of adults, so it makes sense to me that the opposite could also be true), or whether there's a more sinister motive behind it. It's worth me also making clear that to my knowledge there is no further evidence of whether he was or wasn't a paedophile, and that I'm only explaining that it has been debated.

7. Anthony Hopkins
The man best known for his portrayal of Hannibal Lecter has led a troubled life, which has only in recent years been explained in part by a diagnosis of Asperger's Syndrome. There are lots of other factors to his troubled life such as family issues, bullying, addiction and so on, but his autism is likely as much of a contributor as anything else, especially for a person of his generation.

There are countless more autistics scattered all over the world and all over history, but these are just a few of the ones you're likely to be familiar with and how they've contributed to modern society. For more autism content please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: A black 5-point star with a gold border on a white background. Under the start is the word "Autism" in rainbow colours, and under that is the post's title "Well Known Autistics" in black.]

Anxiety

If you're a regular reader, or if you've read some of my older posts, chances are you'll know that alexithymia is one of the autism-related conditions I've got, which basically means I have difficulty expressing my own emotions in words, and sometimes even understanding them at all. So with that in mind it's hardly surprising that I'm only now starting to realise that I suffer more with anxiety than I ever thought I did. It's funny how things like this can be there and affect you without you even realising it. I can only remember a couple of times where I've noticed the classic symptoms of anxiety such as nausea, sweating palms and so on.

I've never been the most confident of people but I think there's much more to it than that. I'm always doubting myself, wondering if I'm doing the right thing, wonder if I/what I'm doing is good enough etc. For example, most of the time when I hit the Publish button on a new post I immediately wonder to myself if I've just written a load of crap. Someone on Twitter a while ago once said something that resonated with me quite a bit. They said that perfectionism isn't good because it's often driven by anxiety. I consider myself a perfectionist and I never thought of it like that before. One of my old jobs was preparing route packs for a distribution company and my my supervisor once praised me on how immaculate they are, but said I'm making them too perfect and spending too much time on it when I should be getting each one done as quickly as possible. This is most likely driven by anxiety that I want to do the best job I can because I don't want to get in trouble so I make it as perfect as I can, but that takes more time than they like. I ended up being made redundant from that job but my perfectionism isn't something I've ever been able to change. I'm very rigid in that sense, which is a classic autism trait. When I do something I has to be perfect, and more importantly it has to be right.

As far as I can remember I've always been one to look quite negatively on myself as well as things that could happen. If there's something that I can see a potential negative outcome for I usually spend a lot of time thinking "what if" although I like to think I'm also good at balancing out the positives and negatives and looking at the probability of each outcome. Whenever I get a notification for something on my phone, if the notification shows the first few words of the message I usually have a feeling of dread as though someone is definitely going to have a go at me, or give me some bad news or something. Somehow that doesn't tend to happen if it doesn't show the start of the message in the notification, and of course my feeling of dread is always wrong. There was one time recently where I'd done something wrong that annoyed my wife, and I spent a while thinking I'm a moron and what if she hates me and all those kind of things. This is when the logical thinking kicks in - sometimes on its own, sometimes deliberately. I start thinking that she's human and that she's an emotional and anxious person herself, and she'll calm down eventually, and whatever I did definitely doesn't warrant a divorce. I know she reads my blog so I just want to quickly clarify that I've never thought she was going to divorce me, but just using that as a worst case scenario that I can rule out to reassure myself.

When I first asked my GP back in 2017 to refer me for a second opinion on an autism diagnosis she refused and gave me the details for a self-referral mental health service that I then contacted, and they concluded that I had social anxiety. While I don't deny that I'm very socially anxious the help they gave me was a waste of time mainly because autism still wasn't addressed as the underlying cause of it. You may be wondering what difference it makes as autism isn't something to be treated or cured, but to a certain extent a diagnosis of autism can make a world of difference because it can be very validating and gives a much simpler way of explaining how you are to other people: "I'm autistic." Not that it solves anxiety - social or otherwise - but it certainly helps in my experience. They booked me in for CBT therapy and after a couple of months I realised it wasn't working and stopped. Shortly after that I went back and saw a different GP who then gave me the referral that lead to my diagnosis.

At the moment I'm fine with my anxieties because they don't cause much of an issue, but who knows - after lockdown is over my situation will most likely change so I may need to revisit CBT or a similar therapy depending on how things go. At the time of writing my employer are expecting me and the rest of my home working team to return to the office after lockdown (I've worked from home for a couple of years and we were supposed to return to the office in early April until the pandemic happend). At lot of people have come and gone in the office since I started working from home, so it'll be like going into a completely new environment when we eventually do go back. With that said, my son will be starting school in September which might give me more downtime to decompress and process things, so we'll have to see how it goes.

So there you have it. It's definitely possible to have anxiety without realising it, and I think it's safe to say that goes for almost any mental health issue as well. I'm still unpacking my anxieties bit by bit, but I hope what I've unpacked so far has been insightful and interesting. Please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: Silhouette of a person on a chair, hunched over slightly holding their head. There are bubbles showing thoughts entering their head including "Don't," "Can't," and "What if..." Under the silhouette is the word "Autism" in rainbow colours and "Anxiety" in black under that.]

Racism In Autism

I had originally scheduled a post on insomnia for this week, but with everything going on with Black Lives Matter and all the protests I thought it was important to address it now, as well as how racism had manifested in autism.

Obviously there are individual autistics who are racist just like there are individuals of every kind who are racist, and just like there are good and bad people in a more general sense, but what I'll be discussing here is the racism (whether intended or not) within the autism diagnostic process.

The diagnosis of people with autism has always been heavily biased in favour of white boys and men. I think the earliest we can look back to find the root of this is to the 1930's and 40's with Leo Kanner and Hans Asperger. I explained in a previous posts about how Hans Asperger worked closely with the Nazis who were a heavily racist German political party aiming to establish the German population as a superior race by eradicating others, famously including Jews. I remember someone saying to me years ago that their aim was to create a race of purely white skinned, blonde haired, blue eyed humans but now true that is I'm not sure.

With Asperger's heavy influence at the beginning of our understanding of autism, and the much more racially biased nature of the mid 20th century in general, it's little wonder that racism stuck around in the diagnostic system for such a long time. If I'm honest I do sometimes wonder how nowadays we're only just starting to properly understand autism, but I guess any progress is good progress, even if it's slow.

So how are people of colour affected in the modern day in terms of getting an autism diagnosis? First of all there's medical bias that could stop them from getting a diagnosis. This could mean for example that a doctor (especially an older one whose knowledge might be more outdated) may be may not refer a black person to an assessment service because they don't believe that they are - or even can be - autistic. Just to give an insight into how real medical bias is, my wife is a student midwife and highlighted this article to me which explains that women of colour are 5 times more likely to die in childbirth than white women. Obviously this is a huge difference and is clearly unacceptable.

Another factor that affects the diagnosis of people of colour is their location. One of the many things I learned from watching Netflix documentary 13th is that the "war on drugs" in the US was designed to target black people who were predominantly poor. So in relation to autism, especially in countries like the US where medical and health services are expensive, the autistic person is less likely to be able to afford assessment for a diagnosis.

The final point I want to make (although the points I'm making here are by no means exhaustive) is that other people's reactions and attitudes might be more likely to put them off seeking diagnosis. This ties in a bit with what I mentioned earlier about the attitudes from the 30's and 40's lingering for a long time. Their peers, family, colleagues and so on might have outdated views which can cause disheartening, or even worse it can cause argument and fall outs with the people they confide in.

All of these issues that I've discussed are reasons that we need to educate and inform the whole of society, which is absolutely what I aim to do with this blog, as do lots and lots of other autistic advocates through their blogs, YouTube videos, social media accounts, books etc. I feel like now more than ever education is needed around how autism presents and affects all races, genders, ages... everyone! As a final note I think it's important to share some links to black autistic advocates' pages. The best ones I can think of are AutisticTyla and Aspienelle. These links are to their Instagram accounts. Let me know about any more black autism advocates in the comments or on social media!

I really, really hope I've helped with this post. I know I say that about every post, but this one in particular is such an important topic as we're essentially missing out on a whole section of the autistic populaton. Please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.



[Image description: The Black Lives Matter logo (a black fist raised upward) with the infinity loop in white on the wrist to symbolise that black lives really do matter whether disabled, autistic, otherwise neurodiverse, or anything. This is on a white background and underneath it is the post's title with "Racism In" in black, and "Autism" in rainbow colours.]

My Stims

I wrote a post a while ago about why I enjoy chewing. At the time that was my main stim. I do still chew my Chewigem button necklace, but my stims have evolved and changed since then. Either that or I'm just more aware of the things I do these days - maybe a bit of both. Because of that and because almost anything can be a stim I thought I'd go through a few more of the stims that I do.

Just as a reminder, stimming is short for self-stimulatory behaviour and the definition is a repetitive behaviour that appears to have no reason or purpose, although it helps autistics to regulate and ground themselves when they're overwhelmed or emotional.

Finger Stim (No idea what to actually call it!)
One of my more common stims that I've been doing for a while is running my thumb along the inside of my fingers on my right hand. I tend to do that when I'm talking to somebody as I'm often anxious during conversation. It's not usually something that I do consciously (which is the same for most of my stims) but I do notice myself doing it, and I think it's because it's quite a subtle thing to do, especially if I can put my hands in my pocket or something. I find that a lot of my stims are either subtle or "socially acceptable" which helps to avoid detection and awkward comments and so on. I also do it sometimes when I'm concentrating - in fact, I'm doing it now while I write this post. I tried to make gifs of my stims to demonstrate but I couldn't get it to work, so I'll just post a picture of each to help give you an idea. (Let me also apologise for my onesie and messy hair in the pictures. It was a busy day with the kids in self isolation, so I didn't get the chance to have a shower and get dressed until later on!)


[Image description: My hand during the above stim. In the image my fingers are held together and my thumb is reaching down to my little finger. While doing this stim I rub my thumb nail up along my fingers, past my index finger and back down again repeatedly.]

Flapping
It's only recently that I actually realised I'm a hand flapper. Turns out I've been doing it subconsciously for ages, but because the way I do it down by my side and with just 1 hand is very subtle compared to the traditional autistic hand flap it seems to have slipped under even my own radar. It wasn't until just a few days ago when I was tidying up in the kids' play room that I noticed myself doing it. Something else I learned not long ago about flapping is that there are actually different kinds of flap. Obviously there's my own subtle versions like this, and the classic flap where you hold your hands in front of you and flap them up and down with your arms. But it's also classed as flapping if you do it with just a wrist flicking motion similar to how you would shake water off your hands after washing them. It sounds obviously, but I guess it's just one of those things that you don't always register. It wasn't until I realised a flicking motion is also flapping that I realised what I do is flapping. I guess it shows what a difference subtlety can make.


[Image description: My hand down by my side while flapping.]

Leg Swaying/Jigging
This is probably the ultimate in subtle stims because even though it's often noticeable (I used to get told off for doing it by the girl I sat next to at one of my old jobs), it's something that almost everyone does at some point so it doesn't get questioned. I haven't posted a picture because all it's going to show is my leg, but while sitting with my foot on the ground I will either jig my leg up and down or sway it from side to side. I think I do both about equally. It's jigging up and down that I got told off for because we worked upstairs on quite a wobbly wooden floor.

Rocking
This is a classic autistic stim. Typically it's done when sat down and by rocking your upper body either forwards and backwards or from side to side. I also do a standing up variation, usually while I'm waiting in a queue for example, where I shift my balance from one leg to the other and back again to rock myself from side to side. Other than that, the times I've found myself rocking most were when my son was a baby and I used to do the night feeds. I was half asleep and I never used to realise I was rocking until my wife told me to stop it. It was probably just a thing my body did to try to keep me awake long enough to get through the feed until I could go back to sleep. I've also found myself rocking while sat with my kids reading stories or playing with Lego etc. Again, no point posting a picture because it's self explanatory and wouldn't show much.

Bouncing
The last one I'm going to mention is bouncing on my toes, which comes from when my kids were babies. I used to do it while holding them to bounce them to sleep or just settle them down and it's just carried on from there. I only do it at home and it's when I'm waiting for something like my tea to brew. When I'm bouncing I tend to wander around as well in bouncy steps. I try to keep some sort of rhythm to it but I think I usually fail, but it keeps me occupied.


[Image description: Me bouncing on my toes around my dining room. One foot is completely off the ground while the other has just the heel off the ground. I keep my heels in the air the whole time I'm bouncing.]

These are just a few examples. This list is by no means exhaustive for either me or autistics in general and it's always best to remember that everybody stims in one way or another. It's just that autistics usually stim differently, whether that's more noticeably, more often and so on. Don't forget to please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.

Washing A Weighted Blanket

A lot of autistics - myself included - love weighted blankets. They're not only good for autistics from a sensory point of view, but they're also good for any mental health issues such as depression and anxiety. I always describe it to people as "a big, one-person hug" and I sleep under mine every night.

Obviously with me using it so much, and also with having 2 young kids around as well, it's bound to get dirty sooner or later. My daughter got mine dirty a while ago and it ended up sitting in the corner being unused for ages because I had no idea how to clean it. I eventually got round to finding out online how to clean it so I thought I'd explain how to do it here, as well as the mistakes I made so you don't repeat them.

First of all, weighted blankets do tend to be machine washable, although due to the weight of them it's best to hand wash them unless you've got access to an industrial washing machine. The same applies with tumble dryers.

Hand washing is simple. If you're washing the whole blanket you'll need a bathtub or something of a similar size to wash your blanket in. Regardless of how much of the blanket you want to clean you'll also need a mild detergent and somewhere to dry it. I'll explain the process here as though you're washing the whole blanket.
  • The first thing to do is to fill your bathtub with enough lukewarm water to completely submerge your blanket, and add between half to a full cup of mild detergent depending on the size of your blanket. Strong chemicals, such as bleach for example, can damage your blanket so it's best to avoid them. Make sure the detergent is spread evenly by running your hand through the water.
  • Put your blanket fully submerged in the water and gently clean it by kneading it. It's best to do it in sections so you know where you've cleaned and where you need to go next.
  • Once you've cleaned it with soapy water, drain it all out of the bath and rinse the blanket all over with clean water, I used the shower rather than the bath tap as being able to move it freely made it a lot easier. Brush or swish the blanket with your hand to make sure all the soapy water has gone. Do this until the water from the blanket runs clean. When I cleaned mine the water coming from it was quite dark so it's easy to tell.
  • Get rid of as much water as you can from the blanket, although in my experience you're not going to get rid of anywhere near all of it. Avoid wringing the blanket out like you would with most clothes as it can misshape the blanket. Instead it's best to fold it or roll it on top of itself and press on it to squeeze out the water. The tighter you roll it the better, although my blanket is too big to roll it effectively.
  • The final stage is drying. You may need to think about where you've got the room to hang your blanket out to dry, which I found quite tricky. If it's the middle of summer and you have somewhere to hang it outside then it's easy enough but I had to get slightly creative with mine, which I'll go into shortly.
There are 2 mistakes that I made when I washed mine. The first one was that even though it was just a small area that my daughter got mucky I thought it was best to wash the entire blanket. I could have just washed the dirty area, which would have been a lot quicker and easier and I could have probably done it in the sink instead of the bath. The other mistake I made was that I assumed that I could just hang it up to dry on the kids' climbing frame in the garden overnight. The issue with that was that it was in winter and I underestimated how cold it'd be. My thinking was that even if the temperature doesn't dry it, it should still drip dry at least to a certain extent. I was wrong. I woke up in the morning to find it frozen solid. And yes, it was a stupid thing for me to do in the first place. After that I looked around in the house for where I could put it to dry next to a radiator. I ended up unfolding the decorating table on its side in the bedroom, and laying my blanket across it next to the radiator. I kept checking it every now and then and rotating it as it dried. So the lesson from that is plan ahead where and how you'll be able to dry it.

Hopefully this post has been useful as weighted blankets are quite popular among neurodivergents in general, not just autistics. If it's helped you or if it's been interesting please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: Black and white outline image of a washing machine. The drum has water in it, and in the water is the text "10kg" as that's the weight of my blanket. Under the washing machine is "Autism" in rainbow colours and "Washing A Weighted Blanket" under that.]

Autism Myths

When thinking of autism most people will conjure up images of some sort of stereotype, quite often in the form of either Sheldon Cooper or Dustin Hoffman's Rain Man. While some autistics may have certain qualities and/or "super powers" reminiscent of these stereotypes, autistics are much more than just the visible traits seen in the media.

Fellow autism advocate Christa Holmans (Neurodivergent Rebel on YouTube) did a short series of "You can't be autistic because..." videos on her channel that addressed some myths around what people think autism is/isn't. Just because I think she's bloody brilliant I'm going to use one of the myths that she busted as an example for this post. In one particular video she addressed the myth that "You can't be autistic because you have empathy." While some autistics do lack empathy (I do struggle with empathy unless it relates to someone I know and/or care about) the majority of us find that we either have too much empathy, or we just don't know how to show it even though we're feeling empathy. These could result in any number of outward responses depending on the person. Some may be overwhelmed by their empathy, some may not show any outwards signs because they don't know how to, and for others like me it varies depending on the person or situation. For me, even if I do feel a lot of empathy I don't really know what to do with it. If it's my wife who's feeling upset for example, I'll cuddle her and try to talk to her even though I don't know what to say. I don't think I'm empathetic to most people, and overall I'm more empathetic towards animals than people.

Judging by my dad's reaction to me getting assessed for autism I think the reason he's not convinced is because all he can see is the stereotype that we're all severely handicapped and dependent on full time care. Our needs are many and varied, and each person's needs are different from each other. In my case, I've been holding down a full time job for 9 years until recent weeks (I'm still working but had to go part time due to unrelated circumstances), I'm happily married, I'm a dad of 2, I drive, I do a lot of other things that a stereotypical view of autism wouldn't allow. I'm hardly handicapped. And while I admittedly think I'd struggle to live fully independently I'm independent enough to do all of the things above. There are definitely things I struggle with such as dealing with finances and remembering self-care aspects if my routine has been disturbed but I'm far, far from the image that my dad has of autism.

There are misconceptions that we all have "super powers" in the vein of Rain Man who is able to instantly count the number of toothpicks being dropped. Some people do have intense skills not usually seen in neurotypicals, but not all of us do. I remember seeing something online a few years ago about an autistic artist who accurately drew the New York skyline purely from memory. In contrast I've got no intense skills that I know of, just a determined mindset when I'm trying to do something that sees me putting more effort in to achieve an outcome than neurotypicals would. When I used to go to the gym a lot in my early 20's my personal trainer told me I was one of the hardest workers in the entire gym. At work my team leader has got me involved in a project analysing the team stats because I like analysing figures and if I'm stuck I'll either keep working at it or ask for help from someone who knows what they're doing. It's this determination that gets me to where I want to be. In fairness, people with extreme skills might rely on determination like this a lot more than it seems from an outside perspective, but it could be a mix of society's view of autism as well as unseen internal effort that makes it look more natural and easy than it is.

People often don't consider that if somebody doesn't show any physical signs of disability it doesn't mean they're not disabled. Disabilities can also be mental/emotional, and regardless of whether it's physical or mental, a lot of disabilities can fluctuate meaning some days they're bad and some days they're not. Autism is referred to as the invisible disability for a reason and is legally considered a disability in the UK, although some autistics might not consider themselves disabled depending on how much it affects them in daily life. Things like sunflower lanyards are great for highlighting when somebody might have hidden struggles or need extra support while in a public space. In fact, I was recently on holiday at Butlins with the wife and kids, and when we were in the club one night for one of the shows there was a young boy at the table next to us with a sunflower lanyard. I did wonder if he was autistic but there are lots of other possibilities that it could be. Either way, I don't like to ask people if they're autistic - I let them approach me about it when they notice my "This is what autism looks like" hoodie, which has happened a couple of times recently.

These are just a few examples of the myths and stereotypes that surround autism, although there are many more. If this post has been interesting and you'd like to see more please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.



[Image description: Question marks on a white background. The middle one is the biggest and is in rainbow colours to represent autism. The others are black, various sizes and scattered around the image. At the bottom of the image is the word "Autism" in rainbow colours and "Myths" directly under it in black.]

Guest Post: Am I Autistic?

This week is my blog's very first guest post, so it's something I've been excited about sharing. It's by my online friend Kayleigh Hyland of Kayleigh And Her Friends. Kayleigh focuses on a range of subjects, most notably body positivity and sharing inspirational and positive stories from many others who she meets online. You can check out her own blog here, and also find her on Twitter and Instagram as kayleighann88 and kayleighandherfriends respectively. Of course you can find me in all the usual places online, but this post isn't about me so without further ado, I'll let Kayleigh take it away:

Am I Autistic?

I’ve asked myself this question since I found out what Autism was. There are traits that I see in myself which mirror the traits that put you on ‘The spectrum’.

I struggle with breaking routine and like things to have an order, I also have anxious and obsessive compulsive behaviours. Though in themselves these disorders are not typical of people with Autism, they are more common than in the average person. I can also struggle to concentrate when there is a lot going on at the same time and if I’m into something, like a TV program for example, I will talk/think about it a lot until I replace it with something else.

However, I do not struggle with social cues, in fact I have a better understanding of body language than most people.
I maintain good eye contact and I can differentiate between when someone is being ironic and when they are serious.

I think this is why there is a spectrum as a lot of us will find that we relate to a number of the behaviours even though we are not diagnosed as Autistic.
x

Head Canon: Is Everest Autistic?

Everybody has fictional characters that they feel a connection to and find that they relate to a lot more than others. Sometimes a character is written and/or portrayed in a certain way that is deemed by fans to be an indicator (whether deliberate or not) of certain attributes such as autism for example. There are a number of characters that autistics seem to widely relate to, and of course some that only a few relate to. While it's not a game that I've ever played there's a character called Symmetra from Overwatch who many fans had speculated was autistic. The creators of the game later confirmed that the speculation is correct and that Symmetra is indeed autistic.

As a dad of 2 I don't have a lot of time to watch TV, but one of the things we do watch a lot of is Paw Patrol. I could absolutely be either right or wrong here, but I've got a theory that if any members of the Paw Patrol are autistic it's Everest. For anybody unfamiliar with Paw Patrol, Everest is the Siberian Husky who is an expert in mountain/snow and ice missions. She's always been my favourite of the pups but I've always put it down to her being a Husky, which is a breed I've always liked because of their wolf-like appearance. But recently I've started to wonder if there's more to it and I've noticed that she has a few traits that could be considered autistic. Admittedly spotting these traits is a bit difficult because she's not one of the 6 main/original pups so she's not in too many episodes, but here are the few that I've spotted without deliberately going through each of her appearances with a fine-toothed comb.

She doesn't seem to understand metaphors and non-standard speech. The first example comes in her first episode The New Pup where she joins the Paw Patrol after meeting and looking after Jake while he's stranded in the Antarctic. At one point Jake tells Everest that she rocks, to which her response is to assume that it's a good thing and then starts singing "I rock! I rock! I rock!" before she pauses to ask "Wait, what kind of rock am I?" Jake tells her he'll explain on the way to her igloo, which he presumably does because at the very end of the episode she tells the rest of the pups that "Paw Patrol rocks!" There's another episode, Pups & A Whale Of A Tale, where she's confused by Captain Turbot (who regularly - and annoyingly - speaks in alliteration) when he explains that there's a baby whale separated from it's mum under the ice. She gets the gist of it as she repeats it in simple terms but she does that to check she's understanding him right, whereas most of the time everyone else understands him straight away.

Going back to her debut episode The New Pup, Everest indicates at least a couple of times that she loves rescuing people. To be honest I can't quite put my finger on it, but there's something about it that comes across to me as an autistic special interest. It may just be the number of times she mentions it in the episode, but it's worth mentioning when considering if she's autistic.

In the episode Pups Get Skunked, Everest is actually the only pup who gets "skunked" when a skunk sprays her in the face causing her to stink, which repulses the rest of the Paw Patrol. This one is particularly relatable for me because my sense of smell is hyposensitive (meaning it's weaker than most people's sense of smell). Everest seems to have a similar hyposensitivity because she doesn't think it smells much and can't understand why the rest of the pups are behaving the way they are. Similarly, she doesn't seem to be sensitive to the cold at all but that could just be because of where she lived for presumably all of her life until she met Jake, and also because of her breed she's designed to withstand the cold with a big fluffy coat.

Speaking of Jake, the 2 of them live together in a cabin near the mountain, away from the rest of the Paw Patrol. Previously to that she was living on her own in an igloo in the Antarctic. This screams autism to me because most autistics have such a lack of social interest and prefer living either alone or just with someone who they're very, very close to like Jake is to Everest. As far as I know it's not clear what happened to Everest's family, or why she was living alone prior to meeting Jake, but it's definitely food for thought when looking from a neurodiversity point of view.

The final thing I noticed is in the episode The Pups' Winter Wonder Show. Everest is driving with Tracker during a blizzard when Tracker asks how she can see where she's going. Everest replies with "I can get around Adventure Bay blindfolded." This comes across as an autism sign to me because she met the Paw Patrol in series 2, and The Pups' Winter Wonder Show was only in series 3. Add that to the fact that she's been spending the majority of her time in Jake's cabin away from Adventure Bay and it makes me wonder if she's some form of savant with the ability to rapidly memorise maps or routes. I once saw a video online a few years ago where an autistic artist took a single helicopter flight around New York and then was able to accurately draw the skyline completely from memory. I think Everest being able to navigate around Adventure Bay without seeing where she's going may be a similar thing.

Those are all of my reasons for suspecting that Everest is autistic, and if I'm honest it actually makes a lot more sense written down than it did in my head! Next time you're watching your favourite shows, playing your favourite games or reading your favourite books, why not see if you can spot any undertones in your favourite characters? It doesn't even have to be autism - it can be anything! If this post has been interesting for you please click Subscribe at the top of the page and follow me on social media. I'm @DepictDave on Twitter, Facebook, Instagram, Pinterest, and you can buy me a coffee at my Ko-Fi account here.

[Image description: A black silhouette of a head with a white silhouette of a cannon in the brain area. Under the head silhouette are the words "Autism Had Canon" with "Autsim" in rainbow colours and "Head Canon" in black.]

Frozen 2: The Mental Health Message

First of all I need to let you know that this is potentially my last ever blog post. The reason for that is I've been looking to make th...