Guest Post: Autism In Women

I've got another guest post for you this week. This time it's by Vicky of Actually Aspling who is a brilliant and very active autism advocate, a fellow northerner, and has a Vaporeon tattoo on her arm which I love! You'll find her own blog here, and she's ActuallyAspling on both Twitter and Instagram. I realised that one of the biggest areas I haven't discussed yet is autism in women so I asked Vicky to write a piece on it for me since I'm not really qualified to talk about it properly due to being a man. So here we go with Vicky's thoughts:

I honestly can’t remember much from my childhood, only what I’ve been told from my parents, things are quite blurry in that sense. From what I know I was quite passive as a small child, and didn’t have many friends, and to be honest that hasn’t changed much.

I’d say being a girl definitely heightened my experiences in some ways, and for that reason I went undiagnosed for many years. Our understanding of Autistic women and girls is ever-growing, its evolving, and we are learning every day, but sadly it came too late for me.
High school for me was a nightmare, everything went wrong, and I stood out for all the wrong reasons. You could say I was a typical Autie girl. I clung to all my friends, I copied their behaviours, hoping I could survive the school day. It didn’t work. As a result, I camouflaged even more, changed my interests and created a whole new persona, something which many young Autistic girls feel they have to do to pass as Neurotypical. The issue is, we shouldn’t be pressuring Autistic individuals to do so, we should be teaching them, giving them the skills to be themselves, and allowing them to unmask.

Honestly, I think one of the reasons I was undiagnosed for so long is because of this mask, I had created a person who could fit in, who could pass as neurotypical, I appeared ‘normal’ or ‘high functioning’ to some. But the thing is, every Autistic woman is different, just like every Autistic person is diverse, its not one size fits all. I also think the understanding of trait presentation was lacking, especially in medical services.

I remember the first time I went to my doctor, I told her I think I could be Autistic, and I could tell by her face that she didn’t believe me already. So, what did she do? She printed off a biased, probably outdated questionnaire from her computer and proceeded to ask me a set of questions. One of which is ‘do you have friends?’ to which I said yes, and that I did like to go out with said friends. And of course, that meant I couldn’t possibly be Autistic, because we all know Autistic people cannot possibly have friends. I came across as quite social, again like the typical autie woman.

Eventually I sought a different opinion, and I was referred straight away for an assessment. This was fantastic, the only downside? My assessment was completed using the Autism Diagnostic Observation Schedule (ADOS), an outdated tool which lacks empirical sensitivity, it is biased and its methods do not reflect traits which are often displayed in women and girls. It’s a tool which follows stereotypical ‘male’ traits. However, I eventually did receive a diagnosis, after years of camouflaging and comments that ‘women can’t have autism’.

So many young girls are going both undiagnosed and misdiagnosed due to outdated tools, a lack of sensitivity and an absence of knowledge. Its about time that things change, we need a new perspective on Autism, but hey, I’m working on it!

[Image description: Vicky sat in her garden cross-legged holding a blue mug with both hands. She has short-ish light brown hair and is wearing a blue t-shirt, blue Christmassy trousers and white socks.]