The first and most obvious thing is the letter to the party leaders from the National Autistic Society that I linked you to in a post a few weeks ago. It's been a while since I checked the number of signatures on the letter but last I checked it was about 13,000 which is well over their 10,000 target. Regardless of the number of signatures, I highly doubt that it's going to get a look in with Boris still in power. The letter was asking the election winner to make publishing the updated autism strategy a priority as soon as the election was over. As pessimistic as this sounds, I'd be highly surprised if the Tories even give it a second thought, and that saddens me.
The other effect it could have is when the NHS is inevitably sold to America it's going to make assessment, diagnosis and support of autistic people a hell of a lot harder... As if it's not already inaccessible. I explained to someone on Twitter that just because assessment through the NHS is free it doesn't mean it's accessible. I had to ask my GP multiple times for referrals. My first referral was unsuccessful because the assessors didn't believe me, and although my second referral was successful it took 18 months from being referred to receiving my diagnosis. The wait in other parts of the country is longer. Autism services in the UK are massively underfunded and under prioritised making it inaccessible as it is, never mind once we lose free access to NHS services. It scares me where the Tories' policies and attitudes will take us when it comes to autism. I count myself very lucky that I got diagnosed when I did.
Don't get me wrong, not all autistics want or need a diagnosis but the ones it would make a difference to are the ones who are going to suffer. If there's a silver lining it's that as a counter to the government's attitude towards disability, the autistic community (and probably the disabled community as a whole) will most likely band together, advocate, educate, spread awareness, spread acceptance and continue to support each other even more. I've got no faith in the government but I've got every faith in us as a community and I hope I'm right.
That's all I'm going to say this week. If you enjoy my blog and find it interesting or helpful please hit the subscribe button at the top and follow on Twitter @DepictDave. I guess the message today is be kind to each other and support those who need it.
I struggle to understand why we would "fix" the NHS with the very so broken US system... it's the only system in the world that we know DOESN'T work!
ReplyDeleteIt's such a scary and unsure future in the UK for those suffering of long time illnesses. I'd definitely recommend moving to the continent (having lived all over it myself) if the sales to America actually happen, even if it sounds like a hard solution. At the end of the day we all gotta put our own health before patriotism.
ReplyDeleteIt's so unfortunate to watch when the politicians fail to look past their own immediate needs. It's great that they can make their country a happy, comfortable place for the well off, healthy white man, but what about those that don't fall into that category - those who are struggling financially, those facing health challenges, minorities... They are all too often overlooked. I'm sorry that you're having to deal with this right now, I know I was watching from over here in Canada and hoping for a different outcome.
ReplyDelete